MRI results from May 16, 2005

Posted by tom | May 16, 2005

On May 16th we visited Children's Hospital again for several doctor visits and a follow-up MRI. Overall we heard good news. The MRI showed less blood in the brainstem area and no new bleeding. This indicates further evidence that Eden has a vascular malformation in the brainstem, but the doctors will still not rule out the possibility that it is a tumor. As we said before, only a biopsy would tell us for certain what it is and that procedure is too risky to attempt.

The opthamologist indicated that the cornea of Eden's left eye looks healthy which is good because she can't fully close that eye. As long as it remains healthy we need only to continue to use ointment in it to keep it moist. We will continue to wait to see if other areas of Eden's brain will compensate for the affected nerves. This means that the doctor will not do surgery to "straighten" her in-turned left eye until it's clear that it is not getting better on its own. In the meantime we continue to patch her "good" eye to preserve vision in the left eye.

The neuro-oncologist and neuro-surgeon thought Eden looked good. We're concerned that her hearing may also be affected and are looking into having her tested.

We can't thank you enough for your prayers, concerns, gifts, help and so much more. You are Christ's hands and feet to us. We are especially moved by the number of children who pray for Eden. Their prayers are precious and they are learning so much by interceding for us.