Baby Eden Update
Posted by tom | Jul 19, 2005I apologize for not updating you regarding Baby Eden's progress.
Eden Linnae is gaining functionality. The home Physical Therapy (PT) appears to be very helpful. We have a vision evaluation tomorrow, a home PT visit on Thursday, a general check-up on Friday (along w/a pre-kindergarten check for Hayley and Ellen), a hearing test on July 25, an opthamology appt and a home PT visit on July 26, a home PT visit on Aug 2, possibly a hearing follow-up on Aug 3 (if July 25's report is negative), and an MRI on Aug 4 (paired w/a visit to the oncologist).
So lots of follow-up, but the most important visit will be the MRI. We're looking for this to confirm a bleed in the brain and a clearer sense of future direction. This will, alongside the other visits, slow down the number of our visits and Lord willing, enable us to focus on PT and observe continuing improvement of function (closing of the eye-lid, decrease on facial palsy, more tracking w/the eye, movement of the head). Thanks for asking, praying, and 'standing w/us.'
I'm so thrilled I finally got to meet your sweet baby Eden! She is precious (I *love* the pik of her in the blanket). She could not have asked for better parents on the planet. Or for better older sisters. We'll be thinking of you and sending 'emotional energy vibes' while you go through all these tests and appointments. xokate
Posted by Kate, Jul 19 2005, 18:12ps: get some cabin pictures up, yo!