Eden's MRI: Good Report!
Posted by tom | May 26, 2006Thursday's MRI witnessed to the power of God and the answering of many prayers of the people of God as the blood in Eden's brain stem area is being reabsorbed. Our physican team is confident in the diagnosis of a "cavernous malformation" (CM) which our doctor described as a leaky blood vessel. The CM itself doesn't show up on the MRI b/c it's so small, but rather it's the blood around it that you see. It's only as big as the bleed. And in Eden's case, since the blood is disappearing, it's getting smaller. This is the closest description we've found for it--not sure if it completely matches Eden's diagnosis--see http://www.angiomaalliance.org/cainfo.html All the blood present in the MRI is old and there is quantitative (and considering her growth proportionally) less blood visible than the previous MRI.
In addition, our physican team is confident in transferring her care to a neurosurgeon at Hershey Med, trained at Children's in Pittsburgh, to follow her care and address any significant developments (note: there is a 1-2% chance in a given year of a repeat bleed). Our doctor has a high level of confidence in this neurosurgeon and will assist us in acquainting him with Eden's case. And since we will most likely find other qualified specialists at Hershey to follow her eyes and ears, we will hopefully eliminate the need to travel to Children's in Philadelphia (or Pittsburgh).
As you continue to follow Eden's growth and development, please link over to http://groshlink.net/album/eden_06 to download and/or print a photo to have it on the computer (in a prayer bulletin, or the refrigerator) as you, your family, and/or your local congregation lift her up in prayer.
Rejoice w/us in the gifts given by God and responsibly applied by those whom have given Eden care over the past 15 months, in particular the our family physican and Children's lead physican for our case who have consciously offered their gifts, skills, and training to the glory of God.
