Under Construction - Eden

Posted by tom | May 24, 2015

Eden has been making incredible advances this year and we're really looking forward to some next steps this summer. Stay tuned to learn more during our summer relaunch of Groshlink . . . 

The new school year has been great!

Posted by tom | Nov 1, 2013

Please forgive me for taking a break from Groshlink. It has been hard to keep up and one of the reasons has been how well the new academic year has started not only in ministry, but in the home.

One of the greatest joys has been Eden's strong start to the year -- in the classroom, with the therapists, in special activities, at our local congregation. The persistent prayers of the people of God are being heard and we are continuing to press on in the upward hope of Christ Jesus with all the energy we have. Thank-you for your encouragement and partnership. To God be the glory!

PS. Eden has been a great blessing to her younger sister in getting out to the bus in the morning. Another little mom in the house. How many little moms will we have in our house?

To Joni & Friends Family Camp '13

Posted by tom | Jun 24, 2013

Summer 2012. Photo by & courtesy of Marci Weidler, Circle of Life Photography.Pray for our family as we journey to and participate in our second annual Joni & Friends Family Camp. Pray especially for our children to engage well through out the days . . . particularly as they add up to a week.

Last year we found great joy and refreshment in the Christ-centered time with families, friends (including not only new ones, but some surprising opportunity for deeper connections!), and the large support team. Pray for the camp leaders and support team to have insight/strength for all they'll navigate during this full week.

Note: Photo by and courtesy of Marci Weidler, Circle of Life Photography. She took the photo at last year's Joni & Friends Family Camp. Hoping for an opportunity for a new family photo. Stay tuned :)

Interviews on constraint-induced movement therapy

Posted by tom | Mar 31, 2013

Yesterday some members of our family were interviewed for a research study on constraint-induced movement therapy, http://groshlink.net/archives/2012/09/10/sunday-news-eden-at-schreibers. What a joy for us to share Eden's continued improvement. A sign of healing/restoration . . . an anticipation of who she will be in the New Heavens and the New Earth, the reality of which is given first fullness of expression in the resurrection of Lord Jesus the Messiah. To God be the glory!

Come, Lord Jesus. Come!

Footwashing 2013

Posted by theresa | Mar 29, 2013

We intended to leave after supper, but Eden really wanted to stay for footwashing at Elizabethtown Brethren in Christ Church's Maundy Thursday Service. In the end, all 5 of us girls ended up washing each others' feet. There's something poignant and heartwarming and humbling watching your kids wash one another's feet.

Disability: The Campus, The Gospel

Posted by tom | Mar 7, 2013

Clemson professors criticize 'trivializing' disability awareness event (Carl Straumsheim. Inside Higher Ed. 3/7/2013).

Comment: Learning/policy-making involves head, heart, and hands. As the parent of a child with developmental delays and a friend of a number of other parents/children (of various ages), I'm not surprised at the mixed academic response. 

But one must start somewhere and I'm not surprised that the students involved appreciate the opportunity to interact with participating administrators. Let us pray that such opportunities and conversations involve not only administrators and students (even parents), but also faculty in a shared, deeper engagement of "the outsider." May Christ followers be involved in such conversation and "next steps."

Tomorrow I'm attending Disability & the Gospel, Biblical Seminary. Joni Eareckson Tada will be joined by other passionate advocates for those with disabilities. Yes, I'll take notes/pictures to share with friends :) 

Disability and the Gospel

Pray for health in our household

Posted by tom | Jan 29, 2013

Pray for health in our household -- not only for each and every one of our children to be able to go to school this week, but also for the parents to remain strong and able to care for the children.

Pray for the next steps of Eden's therapy to continue to be clear and fruitful with regard to intended outcomes.

"What are you thankful for?"

Posted by tom | Nov 20, 2012

What are you thankful for? -- A great question fleshed out in a timely ESN Blog post by my colleague Micheal Hickerson. 

I continue to be thankful for "One More Day" to serve God with the daily grace of being 'surprised' by the Father's hope and a deep yearning for the new heavens and the new earth . . . engaging in its unfolding even now as part of the Body of Christ, the very Kingdom of God. 

Today I am particularly thankful for the blessing of Eden. God speaks volumes to me through our family's walk with Eden. To God be the glory! 

What are you thankful for?

Thanksgiving: "Tackle Football"

Posted by tom | Nov 16, 2012

Eden came back from a relative's house wanting to play "football" and proud of her strength to "tackle." Perfect for the Thanksgiving season and leading me to give thanksgiving to God not only for her growing strength, but also her joy/confidence in "living life to the fullest." Your prayers, support, and encouragement through the daily grind are a great blessing. To God be the glory!

Sunday News: Eden at Schreibers

Posted by tom | Sep 10, 2012

Seven-year-old Eden Grosh, her dominant arm in a cast, looks out from the ball pit during a therapy session at Schreiber Pediatric Rehab Center. (Blaine T. Shahan/Sunday News). Read more: http://lancasteronline.com/article/local/730157_Schreiber-offers-new-therapy-to-strengthen-submissive-limbs.html.

Praise God for Eden's continued improvement! It is hard to summarize, but "Schreiber offers new therapy to strengthen submissive limbs" (9/9, Sunday News, http://lancasteronline.com/article/local/730157_Schreiber-offers-new-therapy-to-strengthen-submissive-limbs.html) does an amazing job. To God be the glory!

We're done w/Eden's summer 2012 constraint therapy!

Posted by theresa | Aug 25, 2012

Day 15 of OT (8/24): We're done! We made it! Eden persevered and has made great improvements! Look for some news stories in the near future. Blue Ridge Cable news came out yesterday and filmed us and the Lancaster Sunday News will run a story in a week or 2. Eden told me the first day that for her reward when she was all finished she wanted a pony. I told her she had to settle for a pony ride! We got way more than that at Meadowind Farms with my friend Julie Good! And now Eden REALLY wants a horse! Thanks Julie for such a wonderful and memorable afternoon!

Note: On Facebook, check out a few pictures I posted of our afternoon.

Eden's "Cast Off"

Posted by tom | Aug 23, 2012

For our family, today was a big day as Eden adjusted to life without her constraint therapy cast (which she had for the past 3 weeks on her left arm/hand). As part of the morning Eden and Theresa were interviewed by a local cable channel and photographed by the local newspaper for stories on the value of such approaches to therapy. Praying for others to have opportunity to participate in such programs. This was the first in our area and the design of it was a blessing. Theresa and Eden have a debrief tomorrow . . .

Some video from yesterday is posted at http://www.youtube.com/embed/wrCB9ZqXmDg?rel=0.

Currently working and watching the other three girls. Taking a quick break for a fashion show. Wow!

August 2012: Day 6 of Eden's OT

Posted by tom | Aug 14, 2012

The New Therapy Journey: Constraint Induced Therapy (Day 6)

Eden's OT is getting very adept at making and modifying removable casts (secured by three velcro strips)! Eden had a purple repair done to her pink cast yesterday because it was starting to break.

Her current cast for swimming is red and blue -- very patriotic for last week's Olympics :) Her original acquatic cast didn't last long. And yes, she can swim with the cast on! The addition of a small back yard pool came at the perfect time. Thank-you to our friends who passed along the blessing.

Preparing for Day 7. At present Theresa and the younger two are playing hide-and-go-seek with little bears in a manner requiring the extension of the arm/hand to reach. The games to play at home are quite creative. Other examples include having other partners use toes (e.g., Tic-Tac-Tony, KerPlunk) or chopsticks (e.g., Disney Yahtzee) in various games instead of their fingers.

Praise: Eden's intensive 3 week occupational therapy at Schreiber's

Posted by tom | Aug 8, 2012

We rejoice in your continuing prayers for Eden and the family as we press into an intensive 3 week occupational therapy at Schreiber's Pediatric Rehab Center (Lancaster, PA).

Praise: The therapy's going very well. Eden remains enthusiastic about it and is not extremely frustrated, but is really tired at the end of day. It takes a lot of engagement, particularly on Theresa's part at mealtimes (Note: I still cover breakfast, but that's a simpler meal to serve/eat).

Somehow I missed the family opportunity to play honey bee tree by using my toes while Eden used her non-dominant hand, but early in the day I played Disney Yatzee using chopsticks instead of fingers. I must confess that my daughter who helped out did a lot better than me with regard to sticking to the 'no fingers rule.'

We ask you to continue to pray for patience, strength, and proper direction/care/attentiveness for all involved. Pray for Eden to have continued enthusiasm for the endeavor (especially the weekday morning sessions at Schreiber's) and to receive healing through the process.

Prayer Request: Eden's intensive 3 week occupational therapy at Schreiber's

Posted by tom | Aug 6, 2012

Prayer request/family update: Today Eden will be starting an intensive 3 week occupational therapy at Schreiber's Pediatric Rehab Center (Lancaster, PA). Pray for patience, strength, and proper direction/care/attentiveness for all involved. Pray for Eden to have continued enthusiasm for the endeavor and to receive healing through the process.

Eden will be at Schreiber's weekday mornings with additional tasks/assignments to be done at home. Eden's dominant arm will be casted, forcing her to use her weaker right arm. It will be very challenging for all of us. We'll all need to be more attentive to Eden to help her not to become discouraged by the frustration. Thankfully Eden is enthusiastic about doing it! She did great for the pre-testing and cast-making!

Joni & Friends Summer Camp 2012: connections

Posted by tom | Jul 1, 2012

Singing at Joni & Friends Camp 2012.Yes, for most part I took time off from campus ministry while at Joni & Friends Camp this past week. But disabilities are part of daily life (including our family's), as such we had time with

  • parents of a PSU-Hershey alum ('12, PhD) who a younger child with disabilities
  • Brian Funk: Director of the Eastern PA office and parent of an incoming PSU-Hershey Medical student
  • Jerry Borton: Director of Greater Philadelphia Office, Professor of "Theology of Suffering & Disability" at Biblical Seminary. He has interest in resourcing ESN by blogging/speaking on the topic of challenges faced by those with disabilities. Note: This is a topic I've not thought much about in relationship to higher education, but is one which will become directly relevant to our family in a few years. 
  • Mike King: Joni & Friends author/speaker/resource person in the area, http://www.livingwellwithadisability.org/2012/01/cross-country-in-a-wheelchair-living-well-from-sea-to-shining-sea/)
  • various Grove City College connections: including an alum living in South Central PA, a current student, and prospective student. 
  • some beautiful few shared relationships from 'da Burgh :)

Note: Joni Eareckson Tada's coming to Biblical Seminary on March 8, 2013. I'll be marking that and a fall Eastern PA office event (September 29) on my calendar.

Joni & Friends Summer Camp 2012: we are HIS workmanship.

Posted by tom | Jun 30, 2012

Wrapping up at Joni & Friends Camp 2012. Theme: For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do (Ephesians 2:10, NIV).

Our family had a beautiful time away with Joni & Friends this past week. We found their ministry (or should I say family) a great encouragement. Still processing our next steps of involvement. If you're a friend on Facebook, check out the ton of pictures we posted :)

Stay tuned for more pictures, stories, and connections here on Groshlink. . . .

For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do (Ephesians 2:10, NIV). Amen!

 

Eden finished 1st Grade!

Posted by tom | May 30, 2012

Yes, Eden finished 1st Grade. She has grown in so many skill sets that it's honestly hard to believe, even if one uses a lively imagination.

But nothing is impossible with God. To God be the glory!

Pray for Eden's parents as "summer vacation" begins, especially for the strength, patience, and insight to lead a household with 4 little women. May we all grow in Christ-likeness each step of the way.

Renovaré Essentials Conference: Praise God for the childcare!

Posted by tom | Apr 22, 2012

Renovaré USA logo

Your Saturday morning prayers were heard!

After convincing the little ones to get in the car and try out their childcare rooms at Elizabethtown Church of the Brethren, their resistance melted. The well thought out and coordinated childcare provided by Elizabethtown Church of the Brethren in partnership with the Renovaré Essentials Conference at Elizabethtown (Pa.) College enabled me to have the space to go to Saturday's conference without fear of meltdown/issues. Eden was well taken care of throughout her time at the conference. A true blessing to our whole family on a busy day and to our family/ministry in future endeavors which benefit from the time in the presence of God as part of the Body of Christ growing in following Christ. Thank-you to Elizabethtown Church of the Brethren, Atlantic Northeast District of the Church of the Brethren, and Renovaré. To God be the glory!

PS. I had opportunity to briefly chat with Richard Foster about my ESN blog series with his son Nathan. In response Richard smiled, discussed his appreciation for his son's work, and shared a story about his first climbing trip with Nathan. What a joy to hear him briefly reflect upon it in person. Notes from the conference, including from presentations by Richard, coming :) Hoping to even post some Renovaré material on the ESN blog. More on that later . . .

JUMP!

Posted by tom | Mar 26, 2012

Eden continues to develop in so many ways. Please join us in praising God for her growing ability to JUMP! She's even beginning to bend her knees some. Yeah! What a beautiful spring and summer this will be for our family with Eden more active and with the ability to enjoy her time outdoors even more. To God be the glory!

Happy 7th Birthday to Eden!

Posted by theresa | Feb 23, 2012

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I shared earlier today that it's Eden's birthday. She turned 7 today. And I posted a few baby pictures of her.

What you can't see in the pictures are the thoughts in my head as I watched her get those pictures taken. The picture of her in the basket was taken at the Picture People, just days after we were told that Eden had a brain tumor. I made it a priority to get her picture taken before surgery and chemo ravaged her tiny body. I scheduled the appointment just like a million moms do every day, but I didn't mention the morbid thoughts swirling through my mind. A few days after the basket picture was taken our doctor called, shedding the light of doubt on the original diagnosis. Maybe it wasn't a tumor after all, but instead a less life-threatening vascular malformation (a mass of blood vessels all mumbled and jumbled together in a way they shouldn't be).

My amateur photographer friend, Michelle, offered to take the black and white picture (click for more). She took many. I don't remember what we talked about at the time, probably what poses I thought would be cute. But I know what I was thinking. Would my precious baby girl even live to see her first birthday? I wanted to have as many pictures of her as I could. I wasn't sure there would be a lifetime of photos. (More)

Tooth extraction. Health coverage. Happy Birthday!

Posted by tom | Feb 22, 2012

Yesterday, the oral surgeon took out Eden's fractured baby tooth. She recovered quickly and was wound up this morning as she began the celebration of her 7th birthday. What a joy to share One More DayTo God be the glory!

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PS. Pray for Theresa as she continues to wrestle with insurance to cover various medical expenses for Eden, in particular the fractured tooth extraction and drops for the eye whose lid does not fully close.

Prayer: Fractured Tooth, Health Coverage

Posted by tom | Feb 10, 2012

Pray for the next steps of care for Eden's fractured baby tooth. The fracture was caused by an improper bite (due to her developmental issues) applying too much regular pressure on one side of the mouth, even one lower tooth on the one side of the mouth.

After she expressed pain we took her to the dentist, who referred us to the oral surgeon. We're waiting for the Monday consult, at which time we'll also find out more of the specifics on what our health insurance will 'cover.' Thankfully the permanent tooth, even though there is not space for it to fully come in at this time, is just below the surface and will hold the space.

Pray for patience and insight for Theresa as she tries to resolve three health insurance cases, including this one. Pray for God's provision of the financial resources necessary maintain the current level of care for Eden. Pray for healing for Eden. Join me in longing for the new heaven and the new earth!

Your Father knows the things you have need of before you ask Him. -- Matthew 6:8

A book in a day

Posted by tom | Feb 9, 2012

The other day I read "Buffalo Before Breakfast" (Mary Pope Osborne. Random House. 1999. 72 pages) with Eden in a day -- well I should credit Theresa for a chapter.

Fun! I really liked my introduction to the "Magic Tree House Series." Hoping Eden will check out another from the school library.

Eden's "Up and Running"

Posted by tom | Jan 18, 2012

Eden came back hungry & wound up after receiving her new ear tubes. She's running around the house with our younger one. To God be the glory!

Hoping we can give both of them a good nap :) We rejoice in your prayers and encouragement.

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